Prevention

Research

Young-onset colorectal cancer cases are

By the year 2030, the number of young-onset colon cancer diagnoses is predicted to double and the number of young-onset rectal cancer diagnoses is expected to quadruple.

One in ten new cases are diagnosed before the age of 50.

The Numbers

71%

of young people with colorectal cancer are diagnosed at advanced stages

11%

of colon cancer diagnoses occur in people under 50 in the US

18%

of rectal cancer diagnoses occur in people under 50 in the US

What you can do

Signs & Symptoms

If you experience any of these symptoms, contact a physician immediately.

  • Ongoing change in bowel habits

  • Blood in stool

  • Rectal bleeding

  • Frequent gas or bloating

  • Weakness and fatigue

  • Unexplained weight loss

  • Anemia

  • Abdominal Pain

Resources

Memorial Sloan Kettering Cancer Center

Memorial Sloan Kettering Cancer Center (MSK)—the world’s oldest and largest private cancer center—has devoted more than 130 years to exceptional patient care, innovative research, and outstanding educational programs. Today, it is one of 51 National Cancer Institute–designated Comprehensive Cancer Centers, with state-of-the-art science flourishing side by side with clinical studies and treatment. The close collaboration between MSK’s physicians and scientists is one of its unique strengths, enabling it to provide patients with the best care available as researchers work to discover innovative ways to prevent, control, and cure cancer. MSK’s education programs train future physicians and scientists, and the knowledge and experience they gain makes an impact on cancer treatment and biomedical research around the world.

Beyond Blue Magazine

Beyond Blue is a magazine written for colorectal cancer survivors, by survivors. Published every spring, this free resource covers topics and issues relevant to survivors from tips and advice to current news regarding colorectal cancer care.

It is distributed around the country each spring and fall to healthcare facilities or is available for download via the button below.

Fight CRC March 2020 Impact Report

Fight Colorectal Cancer (Fight CRC) is the leading patient-empowerment and advocacy organization in the United States, providing balanced and objective information on colon and rectal cancer research, treatment, and policy. We are relentless champions of hope, focused on funding promising, high-impact research endeavors, while equipping advocates to influence legislation and policy for the collective good.

Rachel’s mother is a Fight CRC Advocate. Advocates work year-round in Washington, D.C., pushing for legislation that supports colorectal cancer patients and their families. We also bring colorectal cancer advocates to Capitol Hill every March to tell their stories to legislators, turning their pain into purpose, and passion into action.

Each March, Fight CRC issues an Impact Report to raise awareness of the importance of screening for colorectal cancer.

Early Onset CRC Executive Briefing 2020

There is an alarming increase in Early Onset Colorectal Cancer (EOCRC) over the last decade. EOCRC is defined as a diagnosis between ages 20 – 49. This briefing has been developed to support our Primary Care Providers (PCPs) in decreasing the incidence and mortality of these young patients through education and prompt evaluation of symptoms.

Young-Onset Colorectal Cancer Survey Report

Every year, the Colorectal Cancer Alliance launches its annual survey of young-onset colorectal cancer patients, survivors and caregivers. The Alliance uses the survey to learn about and track the self-reported medical, psychosocial, and quality of life experiences of these often overlooked groups.

This year, the Alliance solicited participation over social media, email, and web-based communities

Younger patients diagnosed between the ages of 19-39 were more likely to report that their concerns were dismissed by their doctors than patients who were diagnosed between the ages of 40-50.

Women were more likely to report that they felt their symptoms and concerns were dismissed by their doctor.

54% of survey respondents were misdiagnosed, 43% with hemorrhoids alone or in combination with other conditions, 17% with anemia alone or with other conditions, 12% with irritable bowel syndrome (IBS) alone or with other conditions, and a startling 11% with mental health issues either alone or with other conditions.

ND Colorectal Cancer Roundtable

The North Dakota Colorectal Cancer Roundtable (NDCCRT), co-lead by the American Cancer Society and the North Dakota Department of Health, is a statewide coalition of organizations dedicated to reducing the incidence of and mortality from colorectal cancer in our state, through coordinated leadership and strategic planning.  The ultimate goal of the state’s Roundtable is to increase the use of proven colorectal cancer screening tests among the entire population for whom screening is appropriate. Please access the screening report to learn more about the prevalence of colorectal cancer in the state of North Dakota and efforts being made by the medical community to become more informed and diligent in screening for it.

Rachel's Remarkable Ride

In the months before her death, Rachel began to express not only how she was feeling and dealing with her diagnosis, but also encouraged others to express how they felt. She sat at a table on the 46th floor of her apartment building with a panoramic view of the New York skyline and the Statue of Liberty and began to write her blog.

If you knew and loved Rach, you may have already read it. If you haven’t, you are encouraged to do so. The messages she shares will provide strength and inspiration to help you overcome whatever challenges you are facing in your life. You can find her here.

Together we can spread awareness of young-onset colorectal cancer and get to the bottom of this.